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Assessing the external validity of the VALIDATE-SWEDEHEART trial

Photo: Pixabay / Ben Kerckx The VALIDATE-SWEDEHEART trial was a registry-based randomized trial comparing bivalirudin and heparin in patients with acute myocardial infarction undergoing percutaneous coronary intervention. It showed no differences in mortality at 30 or 180 days. This study examines how well the trial population results may generalize to the population of all screened patients with

https://www.lupop.lu.se/article/assessing-external-validity-validate-swedeheart-trial - 2025-08-25

Estimating perceived parental substance use disorder: Using register data to adjust for non-participation in survey research

Photo: Pixabay / Ralf Kunze Aims: To estimate the prevalence of parental substance use disorder (PSUD) in the general population based on young adults' reports adjusted for non-participation using register-based indicators of PSUD. Read the paper at https://europepmc.org/article/med/33878599

https://www.lupop.lu.se/article/estimating-perceived-parental-substance-use-disorder-using-register-data-adjust-non-participation - 2025-08-25

Integrating data from multiple Finnish biobanks and national health-care registers for retrospective studies: Practical experiences

A large cohort, consisting of versatile individual-level phenotype and genotype data, can be constructed by integrating data from several biobanks and health data registers in Finland. Co-operation with biobanks is straightforward. However, long time periods need to be reserved when biobank resources are linked with national register data. Read the paper at https://journals.sagepub.com/doi/full/10

https://www.lupop.lu.se/article/integrating-data-multiple-finnish-biobanks-and-national-health-care-registers-retrospective-studies - 2025-08-25

How to design a registry for undiagnosed patients in the framework of rare disease diagnosis: suggestions on software, data set and coding system

Photo: flickr / agilemktg1 About 30 million people in the EU and USA, respectively, suffer from a rare disease. Driven by European legislative requirements, national strategies for the improvement of care in rare diseases are being developed. Read the paper at https://ojrd.biomedcentral.com/articles/10.1186/s13023-021-01831-3

https://www.lupop.lu.se/article/how-design-registry-undiagnosed-patients-framework-rare-disease-diagnosis-suggestions-software-data - 2025-08-25

A Canadian Prospective Study of Linkage of Randomized Clinical Trial to Cancer and Mortality Registry Data

Photo: Pixabay / Colin Behrens In a prospective study, we sought to determine acceptability of linkage of administrative and clinical trial data among Canadian patients and Research Ethics Boards (REBs). The goal is to develop a more harmonized approach to data, with potential to improve clinical trial conduct through enhanced data quality collected at reduced cost and inconvenience for patients.

https://www.lupop.lu.se/article/canadian-prospective-study-linkage-randomized-clinical-trial-cancer-and-mortality-registry-data - 2025-08-25

Umeå universitet söker forskningssamordnare med fokus på processer för biobankers forskningsdata

Du kommer att samla in och ställa samman kunskap om forskningsdata och dess hantering i biobankskohorter, såväl i Umeå som nationellt. Målet är att peka ut förbättringsområden, för förbättrade och förenklade flöden för forskningen. Parallellt kommer du att arbeta med att ge konkret stöd till forskare inom olika biobanksprojekt. Läs mer och ansök på https://www.umu.se/jobba-hos-oss/lediga-jobb/fors

https://www.lupop.lu.se/article/umea-universitet-soker-forskningssamordnare-med-fokus-pa-processer-biobankers-forskningsdata - 2025-08-25

Ny studie: Resursfördelning och utfall inom intensivvården

Photo: Pixabay / Leo2014 Detta forskningsprojekt syftar till att undersöka om det finns patientgrupper som behöver extra mycket resurser, och vad som i så fall skiljer dessa patienter från patienter som inte behöver lika stora resurser. Läs mer om studien på https://www.lupop.lu.se/resursfordelning-och-utfall-inom-intensivvarden

https://www.lupop.lu.se/article/ny-studie-resursfordelning-och-utfall-inom-intensivvarden - 2025-08-25

Ny studie: Maskininlärning för bättre diagnostik och behandling av vuxna patienter som söker sjukvård på grund av andningssvårigheter

Photo: Pixabay / Gerd Altmann Vi avser i detta projekt undersöka om vi med maskininlärning (artificiell intelligens, AI) kan träna en dator att känna igen mönster i akutpatienters data, såsom tidigare sjukdomar, läkemedelsanvändning, undersökningsresultat och sociala faktorer, för att sedan kunna förutsäga vilken eller vilka av de vanligaste sjukdomarna patienten har, som orsakar andningssvårighet

https://www.lupop.lu.se/article/ny-studie-maskininlarning-battre-diagnostik-och-behandling-av-vuxna-patienter-som-soker-sjukvard-pa - 2025-08-25

New position as assistant researcher in epidemiology

Photo: Pixabay / Brian Merrill We are looking for an assistant researcher in Epidemiology for work that is linked to a thematic collaborative initiative on improved pandemic preparedness that has received internal funding from Lund University 2021 – 2024. The initiative is a truly interdisciplinary collaboration for research and infrastructure development that involves Lund university, Umeå univer

https://www.lupop.lu.se/article/new-position-assistant-researcher-epidemiology - 2025-08-25

Nordic Health Registry-Based Research: A Review of Health Care Systems and Key Registries

Photo: Wikimedia Commons / Søren Sigfusson The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and comprise a total population of approximately 27 million. The countries provide unique opportunities for joint health registry-based research in large populations with long and complete follow-up, facilitated by shared features, such as the tax-funded and public health care systems,

https://www.lupop.lu.se/article/nordic-health-registry-based-research-review-health-care-systems-and-key-registries-0 - 2025-08-25

Covid-forskning från Lunds universitet

Image from pixabay / pearson0612 En studie rörande effekter av åldersspecifika rekommendationer i samband med Covid-19-pandemin, i vilken flera forskare från Lunds universitet medverkat, har nyligen publicerats "pre-print" och i samband med detta uppmärksammats i diverse media. Preprint-artikeln finns att läsa på https://doi.org/10.1101/2021.07.22.21260973. En intervju med en av medförfattarna (To

https://www.lupop.lu.se/article/covid-forskning-fran-lunds-universitet - 2025-08-25

The impact of COVID-19 pandemic on vascular registries and clinical trials

Photo: Pixabay / Arek Socha Quality improvement programs and clinical trial research experienced disruption due to the coronavirus disease 2019 (COVID-19) pandemic. Vascular registries showed an immediate impact with significant declines in second-quarter vascular procedure volumes witnessed across Europe and the United States. To better understand the magnitude and impact of the pandemic, organiz

https://www.lupop.lu.se/article/impact-covid-19-pandemic-vascular-registries-and-clinical-trials - 2025-08-25

Open position: Professor at the Department of Public Health

he Department of Public Health, Faculty of Health, Aarhus University invites applications for one to three positions as full professor in research fields of relevance for the Department of Public Health including research related to Biostatistics, Epidemiology, General Practice, Nursing, Public Health Science, Sports Science, Toxicology or Occupational Medicine. The positions are permanent full-ti

https://www.lupop.lu.se/article/open-position-professor-department-public-health - 2025-08-25

Accurate population-based model for individual prediction of colon cancer recurrence

Photo: Pixabay / Colin Behrens Prediction models are useful tools in the clinical management of colon cancer patients, particularly when estimating the recurrence rate and, thus, the need for adjuvant treatment. However, the most used models (MSKCC, ACCENT) are based on several decades-old patient series from clinical trials, likely overestimating the current risk of recurrence, especially in low-

https://www.lupop.lu.se/article/accurate-population-based-model-individual-prediction-colon-cancer-recurrence - 2025-08-25

Utredning föreslår ny myndighet för att samla digital infrastruktur

Photo: Pixabay / Gerd Altmann Den 11 augusti höll regeringen pressträff för att presentera resultatet av utredningen Organisation, styrning och finansiering av forskningsinfrastruktur. Utredningen har letts av Tobias Krantz och föreslår olika sätt att utveckla och stärka svensk forskningsinfrastruktur, bland annat genom att inrätta en ny myndighet med ansvar över digital infrastruktur. En sammanfa

https://www.lupop.lu.se/article/utredning-foreslar-ny-myndighet-att-samla-digital-infrastruktur - 2025-08-25

Coding practice in national and regional kidney biopsy registries

Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed. This paper gives an overview over kidney biopsy registries, explores how these registries code kidney disease and identifies needs for improvement of coding practi

https://www.lupop.lu.se/article/coding-practice-national-and-regional-kidney-biopsy-registries - 2025-08-25

The rise of registry-based research: a bibliometric analysis

The main purpose of arthroplasty registries is to collect information on patients, techniques, and devices to monitor and improve the outcome of the specific procedure. This study analyses the role played by registries in the orthopedic research community and describes publication trends, characteristics, and patterns of this field of research. Read the full paper at https://www.tandfonline.com/do

https://www.lupop.lu.se/article/rise-registry-based-research-bibliometric-analysis - 2025-08-25